Monday, May 28, 2012
Truman had another great day today. He managed to yank out his feeding tube! Fortunately replacement of the tube went well. Also, for the first time since having the breathing tube removed he cried. He has had all kinds of pokes and prods and never once shed a tear. I inquired about this a few days earlier and his nurse in the ICU said that kids with brain injury will often have a very flat mood or demeanor. She stated that it was common for them not to laugh or cry. I felt my stomach sink when she told me this. I thought to myself that I could handle Truman maybe not being able to walk or other disabilities but the idea of him being expressionless or emotionless was crushing. Truman has always been a very expressive little boy. You've seen that great smile in his pictures. Of all our kids Truman was the biggest laugher at this age. He giggles and cracks up at just about anything funny. As much as he would let you know he thought something was funny boy did he let you know when he was mad or sad. Ask any of the other members of our church (our worship service is family integrated). You can imagine then the joy we felt when we saw that first smile and ironically we were equally elated when he cried during his blood draw this afternoon. With regard to emotions Truman is back 100%! Praise be to God!
He did it again! It is 10:53 PM and as I finished typing the last sentence above I looked up to see if Truman had fallen asleep yet. I discovered him holding his feeding tube up in the air examining the tip which was still dripping with formula. Somehow he pulled it out again! True-man is a true stinker! He has no idea it will have to be replaced. Start swallowing dude!
It keeps getting better. He just laughed! It's the first one I've heard. I clapped my hands once and said in a deep voice, "You pulled your tube again". He busted out in a big smile and laughed.
OK tube replacement went well. They taped it to his face twice over and put braces on his hands. The braces are from the occupational therapist and are meant to prevent contractures of his hand muscles. They're not very pertinent at this point since he is moving arms and hands so well but they do a good job of preventing him from grabbing things. Hopefully he won't pull out the tube again. It's now almost 11:30pm and he is still wide awake. He acts like it's party time. He's over in his crib cooing to himself and everytime I say something to him he smiles. I could stay up all night to watch this. I am excited for all of his therapy to start on Tuesday. I know all the therapists will be amazed at how he is doing compared to Friday when they last saw him. I am looking forward to the progress he will continue to make. Once again the biggest improvement we are praying for is his swallowing. Thank you for continuing to pray with us.
In Christ, Cameron