5/25/2012 8:00am: Truman had a fantastic night. His breathing has improved significantly. He does not require any extra oxygen or humidified air. He is starting to cough and swallow more consistently. For the first time since we have been in the ICU, Truman “shared” a nurse with another patient. In other words he no longer requires one-on-one nursing care! His attending doctor this morning said Truman is the most stable patient on the unit. Amazing! Just a week ago he was on an oscillating vent!
Last night I returned to his room with Anna and Jonas after getting some beverages and found him cooing at my parents. His awake times are lasting longer and he is focusing on us more. He has even smiled a few times! This is a joy that cannot be described. Last night I (Cameron) was able to hold him for an hour. Initially we had him sitting straight up which really helped with getting him to cough up the junk in his lungs. What struck me was just how weak Truman is. He can lift his arms and move his head around a bit but he has no core strength. He is unable to support his head and can’t sit up. With regard to strength he is like a newborn baby. We have a long road ahead of us – one that we are so thankful to be on – but long nonetheless. A portion of his fatigue and weakness is due to deconditioning (laying in a bed for over a week) but another component is brain injury. How much of each is contributing is difficult to say. Regardless, at this point it is all about REHAB. Thank God we are at this point!!! As I type this Truman’s nurse came to his bedside and started talking to him. His face lit up with a huge smile. I wish you could all see it.
Specific prayer requests for today: They are going to put in a new feeding tube, nose to stomach. This will be his primary source of nutrition for a little while. However, they also mentioned trying a bottle today. It would be a HUGE blessing if he is able to suck and swallow. This would mean very little need for tube feeds. Please pray that the tube placement goes well and that he can drink a bottle safely and well. Truman is also going to be evaluated by the PM&R (Physical medicine and rehabilitation) doctors today. Please pray for God-given wisdom for them as they determine how to help get our little Truman back to full throttle.